Event Name: Birthday party/rare polyslpenia heterotaxy awareness
When: May 24th, 2014
Where: Private Event.
Harlan, IA
General Information: Our son was born with a rare disease called polsyplenia heterotaxy with interrupted inferior vena cava with exact continuation through the azygos. He had a mal rotated bowel that required bowel reconstruction before he was a day old. only 4 in a million babies born are diagnosed. When Thomas was 9 he began fracturing, he now has osteopenia. At that age the doctors told him no more sports etc. many of his friends stopped being his friend. he has missed 100 days of school so far this year. He has lived, breathed and would die for any star wars. every birthday party he has ever had has been star wars, he put together the death star lego set with one hand working in in 7 days. so much more to this story. he has never met anyone that even has his disease and he is 11 and will be 12. a lot of sports boys teased him about likeing star wars. Please help me make this a special birthday for him. we have no idea what the future will bring. We are willing to ha!
ve his party wherever if you can be there. We are also willing to have it whenever , I can send pictures so you can see just what a fan he is. his dream is to go to the obi ranch in CA and see the worlds largest collection. He has 250.00 saved for that. Thank you and please consider this for Thomas, we would do anything to make a time work. Thomas actual birthday is May 24th. He asked me a while back if I thought he could have a party this year. We haven't had one for him the last 2 years. please feel free to email me or call me and I can explain a little better what he has gone through, but through it all, he has never complained, and has always said, mom, there is always someone who has it worse. He is a great kid.
Event Coordinator: - -
Garrison Attendees: IC-02235 Tom Rohlf as Imperial Crewman
TK-05144 Derek Duncan as Stormtrooper
SL-09160 Robert Carmichael as Darth Vader
TK-17111 James LaGreca as Stormtrooper
TK-51102 Chris Arrowood as Stormtrooper
SL-91337 John Bonar as Darth Vader
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